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pauley   POA Site Supporter Prowler Junkie From:South T E X A S , U . S . A . |
posted 03-22-2001 07:19 AM
    
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butchcee    POA Site Supporter Prowler Junkie From:Lake Ariel, Pa. |
posted 03-22-2001 07:37 AM
Nice gesture Pauley! Isnt that the cause Jerry Lewis stumps for? Let me tell you what I saw once.On the collection conainers that get put in every store around telethon time, written in white unbordered letters on a yellow background (very small and almost unviewable), it said 35% of proceeds go to MDA. This was a while ago, and maybe policies have changed, but this is a disgrace! It was a real eye opener to me, and since then I have become more careful about the charities I chose to donate too. It's too bad for those on the receiving end that hope for donations to encourage research. Send the check directly to Jerry as I'm sure he know's what's going on! ------------------ This message has been edited by butchcee on 03-22-2001 at 07:40 AM |
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pauley POA Site Supporter Prowler Junkie From:South T E X A S , U . S . A . |
posted 03-22-2001 07:46 AM
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butchcee POA Site Supporter Prowler Junkie From:Lake Ariel, Pa. |
posted 03-22-2001 07:59 AM
This is their page that will accept donations: http://www.mdausa.org/donate/index.html ------------------ |
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FatManInTheBathTub Prowler Junkie From:Palm Coast, FL. |
posted 03-22-2001 08:13 AM
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superdanthegarbageman Prowler Junkie From:nyc,ny |
posted 03-22-2001 07:25 PM
hey....look under mda on the internet..feb jerry lewis went before congress to get more money....to put to this cause....how many people have md??? as apposed to aids ...no food..ms...cancer etc...seems to me like theyre feeding a big out of control machine..it may be your pet charity but ive seen how much of that dollar goes to the kids...and let me tell you....not too much..i belive its really around 25cents..on the dollar...anyone care to tell me im wrong/?????..now it looks like our tax dollars are going there too....gee ..i get to pay for it twice....no thanks... ------------------ This message has been edited by superdanthegarbageman on 03-22-2001 at 08:42 PM |
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butchcee POA Site Supporter Prowler Junkie From:Lake Ariel, Pa. |
posted 03-22-2001 07:38 PM
I JUST FOUND THIS. 50 years and no progress huh? So keep burning the money Jerry , and then let's hit our tax dollars too. So from a cure for MD to funding Gene therapy-the cure all for every disease. Wouldn't this be a feather in the cap of the MDA foundation if they discovered a cure this way. Looking for that nobel prize grease man? March 13, 2001 ON MDA's HISTORIC TRIP TO CONGRESS Jerry and other MDA spokespersons persuasively explained in a hearing convened by the health subcommittee of the Senate Appropriations Committee that a huge increase is needed in federal funding for muscular dystrophy research through the National Institutes of Health. You can read more about the visit, including the testimonies of Jerry Lewis, MDA Medical Advisory Committee Chairman and Board member Dr. Leon Charash and MDA Board member Chris Rosa, on this site. Since the Washington trip, many of you have responded to my March 2 letter asking for your assistance in encouraging Congress to boost NIH funding for muscular dystrophy research. You've written beautiful and convincing letters, which bolster the case that it's time for the government to step in. We've done the hard part -- beginning with virtually no understanding of the causes of muscular dystrophy, our scientists have taken apart the muscle cell and its genes to uncover just what goes wrong to cause each form of the disease. And they've found that new genes, cells or compounds can correct those gene flaws, at least in the laboratory. Your messages to your senators and representatives are having a major impact as we continue to work with Congress to develop specific legislation to help increase the momentum of this progress. We're in close communication with Senator Arlen Specter, who chaired the hearing, as he follows up on the need to secure more funding and to change the NIH's grants review and allocation process to make it more efficient. Specter and some of his colleagues have shown strong support for MDA's request. MDA has always been blessed by the generosity of the American people in advancing our mission, and we're endlessly grateful for that essential support. Now, our mission includes seeing that more federal money is invested in speeding the search for cures and treatments. We need your help again, this time your voice. I hope all of you will send letters, e-mails or other messages to your members of Congress. (You can find their names and addresses at www.congress.org.) Tell them your own story and why muscular dystrophy research is so important to you. Tell them they have the opportunity to save lives, to stop the heartache that muscular dystrophy wreaks, to do what's right. As always, the support of our friends, including families who know neuromuscular disease firsthand, will make all the difference. With every best wish . . . The Ross Report Archive
| What's New | Diseases | Research | Clinics & Services | Community Programs | Ask the Experts | Publications | En Espaņol | Telethon | Ways to Help | Video | Search | Site Map | Help Now | Home | ------------------ |
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pauley POA Site Supporter Prowler Junkie From:South T E X A S , U . S . A . |
posted 03-22-2001 08:22 PM
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superdanthegarbageman Prowler Junkie From:nyc,ny |
posted 03-22-2001 08:34 PM
got a good one for you....autistic homes for children and adults...... a whole dollar sent goes to the home ..rebuilding roofs..plumbing..building new group housing..etc... my favorite charity....sure ive got a reason..my nephew is living in one and hes autistic....if interested ill give you the address... ------------------ This message has been edited by superdanthegarbageman on 03-22-2001 at 08:34 PM |
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pauley POA Site Supporter Prowler Junkie From:South T E X A S , U . S . A . |
posted 03-22-2001 08:40 PM
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Jim & Patrick F Prowler Newbie From:Lawton OK |
posted 03-22-2001 09:14 PM
Thanks, Pauley, for your gesture of generosity. Thanks to you, Butchee, for the reference to the MDA site. There is more info on that site detailing the various neuromuscular diseases that the MDA helps the victims of. I am sorry to hear that only 35% of money collected goes to the MDA when you give in a store. It's not that way in Oklahoma. I do think it quite remarkable that this organization has been supported by good hearted people who contributed their hard earned dollars because of the efforts of influential people such as Jerry Lewis. The MDA does some exceptional things on behalf of the children it raises money for, some of an immediate nature, some with long reaching effects. Unfortunately, many MD kids don't live long enough to benefit from the long term effects. When Patrick was diagnosed at age 9, we were told he had the most severe form, Duchenne, and would not likely live to age 20. It is a genetic defect he was born with. He was a normal little boy as a baby, in fact, he looked like he would be an athlete because he had such large leg muscles. He climbed all over everything and didnt exhibit weakness until about the 3rd grade. He couldn't climb the steps on the bus and everyone just thought he was being mischevious by crawling up the steps and into the bus. I have witnessed my son melting away, his body is now emaciated. We had his hair cut short, but my wife couldn't handle it because he looked like a holocaust victim when he had no clothes on. Fortunately, Patrick's body produces dystrophin at the rate of about 5% of normal. This could mean that he may be a candidate for gene therapy once it is available. Most Duchenne kids pass that threshold before they are 11-12 and little can be done for them. But I have hope, hope that there will be a discovery before his window closes. I think the MDA is on the right track. I have felt the same as SuperDan about charities in the past because the officers of certain charities were found to be living oppulent lifestyles off of donated money while simultaneously begging for funds to 'assist' needy people. Long before Patrick was diagnosed, I had deep respect for what the MDA was trying to do. I have seen firsthand how caring they really are, I don't believe the money is wasted by any means. The government has provided research money for cancer, polio, heart disease, aids, among others. I hope they will do the same for MD. I would like my son to grow up and work, earn his money and pay his taxes just like everyone else. I don't think that will happen unless effective gene therapy is a reality. Uncle Sam already subsidizes gifts to various charity by offering tax deductions. Charitable Remainder Trusts are good vehicles to give assets away to a charity yet allowing the grantor income from those assets. Uncle Sam allows that, the tax savings can be significant. The grantor benefits, the charity benefits at his death. The heirs can benefit as well if it is structured properly. Contact an estate planner to find out more. Anyway, thanks to those of you offering your support to the MDA. Please review their website to get a better idea of what they really do. Thanks, Jim Foster |
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pauley POA Site Supporter Prowler Junkie From:South T E X A S , U . S . A . |
posted 03-22-2001 09:15 PM
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FatManInTheBathTub Prowler Junkie From:Palm Coast, FL. |
posted 03-22-2001 09:33 PM
___________ This message has been edited by FatManInTheBathTub on 03-25-2001 at 01:13 AM |
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pauley POA Site Supporter Prowler Junkie From:South T E X A S , U . S . A . |
posted 03-22-2001 09:39 PM
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FatManInTheBathTub Prowler Junkie From:Palm Coast, FL. |
posted 03-22-2001 10:08 PM
__________ This message has been edited by FatManInTheBathTub on 03-25-2001 at 01:16 AM |
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butchcee POA Site Supporter Prowler Junkie From:Lake Ariel, Pa. |
posted 03-22-2001 10:14 PM
Jim, thank you for insite into the program. You obviously know more about it then any of us. While I have no personal knowlege regarding research in the medical community, I had a friend that did. He was developing environmental chambers for cancer research. He described to me how everyone involved would go into their own cubicle and conduct their projects without cooperation with others-never sharing. Everyone want's the feather for their cap alone. This is sad as it only stops progress. What happened to the last 50 years worth of donations to MDA ? They've finally realized that there was no cure so they went into another direction. Gene Therapy will be a wonderful thing when the process is perfected. It's already sucessful in re-establishing blood supply to the heart. Imagine if all these organizations banded together for the common cause. This is what we should be striving for. But everyone is still looking for the feather. I sympathize with you and can only hope that Patrick can attain a better existence then his present one, or at least sustain the one he has now. I see these kids and get the true meaning of the saying " there but for the grace of God go I". I fear however that donations given from the tugged on heart strings after viewing those poor kids on the telethons will just go to fuel tremendous waste in the massive machine that MDA has become. Again, this is my opinion and I personally would like to see my money go to immediate use in a smaller organization. For the record, I know that Andy is telling the truth about his autistic nephew. He gives of himself a few times a year for his organization. Whatever organization you choose Pauley, you're doing a good thing and should be applauded!  ------------------ |
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FatManInTheBathTub Prowler Junkie From:Palm Coast, FL. |
posted 03-22-2001 11:09 PM
________ This message has been edited by FatManInTheBathTub on 03-25-2001 at 01:17 AM |
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Jim & Patrick F Prowler Newbie From:Lawton OK |
posted 03-23-2001 08:24 AM
Thanks for your kind words, Butchee. As for contributions to any organization, I think it is great as long as it is done for the right reason. The Bible says 'God loves a cheerful giver' one who does so with the right motive. Super Dan, I support you for giving to the autistic charity. Patrick also has Asperger's Syndrome aka High Functioning Autism (which is why he is not very demonstrative of his emotions, other kids would go wild experiencing what he has enjoyed with the Prowler guys). There are so many ills in this world that no organization ever gets enough monetarily to assist their chosen beneficiaries. I would encourage anyone to investigate their charity to ensure it lives up to the shared goals of the donor. Thanks again for allowing my contribution to this thread. Jim F This message has been edited by Jim & Patrick F on 03-23-2001 at 08:26 AM |
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pauley POA Site Supporter Prowler Junkie From:South T E X A S , U . S . A . |
posted 03-23-2001 08:24 AM
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FatManInTheBathTub Prowler Junkie From:Palm Coast, FL. |
posted 03-23-2001 09:00 AM
___________ This message has been edited by FatManInTheBathTub on 03-25-2001 at 01:18 AM |
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FatManInTheBathTub Prowler Junkie From:Palm Coast, FL. |
posted 03-23-2001 10:50 PM
___________ This message has been edited by FatManInTheBathTub on 03-25-2001 at 01:19 AM |
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FatManInTheBathTub Prowler Junkie From:Palm Coast, FL. |
posted 03-24-2001 09:36 AM
__________ This message has been edited by FatManInTheBathTub on 03-25-2001 at 01:21 AM |
CJ               POA Lifetime Site Supporter Prowler Junkie Personal ScrapBook From:Rochester Hills, MI USA |
posted 03-24-2001 12:37 PM
FBITBT......... I was finally able to meet Patrick and his family at TSW. Patrick is a wonderful young man with a very supportive family. I wish only the best for all of them. I have nothing against charities and have contributed when able, but with regards to your challenge on this thread, not all of us have $500 to donate. It has nothing to do with you or this argument about who is the fastest. It has nothing to do with wanting to help Patrick and MDA or not. QUOTE: I sure don't see enough of the 300+ members here getting in on this action. QUOTE: Hey now. I really thought that even if this club doesn't care for the FatMan that they would put that aside for MDA Not all of us own our own business or are independently weathly. We are just normal people with normal jobs. Attempting to lay guilt trips on us to donate money is quite unfair. For those of you who can afford to and have the desire to, great. For those of us who can't, I'm sure our prayers and concern are with and for Patrick and other children like him. |
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Jim & Patrick F Prowler Newbie From:Lawton OK |
posted 03-24-2001 02:02 PM
I must concur with CJ. Those who give under compulsion do not get the most benefit from the gift themselves, that is, the joy that comes with giving to others willingly. I think the majority of cat owners give of themselves in many different ways, both tangible and intangible. Some prefer not to let their left hand know what their right hand is doing when it comes to giving, that is, doing so in secret. I'm not in a position, nor do I ever want to be positioned, to question anyone's motives for giving. Some PPC members did some motive questioning back in October, even going to the point of false accusation. Just an opinion, I don't want to get in the middle of any debate regarding racing. I'm just a pencil pusher, and a non-Prowler-owning pencil pusher at that. This message has been edited by Jim & Patrick F on 03-24-2001 at 02:20 PM |
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FatManInTheBathTub Prowler Junkie From:Palm Coast, FL. |
posted 03-25-2001 12:57 AM
__________ This message has been edited by FatManInTheBathTub on 03-25-2001 at 01:23 AM |
AL
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